遺伝性の難病で末期症状にある生後11か月の英国人男児チャーリー・ガードちゃん 治療断念； 続報
せめて自宅で看取りたい、と云うご両親の最後の願いも却下された模様；
- Charlie Gard to be moved to a hospice to die, British judge rules
July 27, 2017 / 6:28 PM, Reuters
- Charlie Gard's parents accuse hospital of blocking 'final wish' for baby to be allowed home to die
25 July 2017 • 4:53pm, The Telegraph
- Charlie Gard’s heartbroken mum says family have been denied their ‘final wish’ as judge rules terminally ill tot will die in hospice preventing them from making ‘precious memories’
Updated: 27th July 2017, 7:14 pm, The Sun
この決定を受け、ご両親はホスピスへの移送に奔走していらっしゃる様子；
- URGENT we need a pediatric intensive care consultant to come forward to assist and facilitate with a hospice stay by 12pm tomorrow, we will pay privately. PLEASE HELP US!! Can you please contact James (Charlie's godfather) on jamesevers1039@gmail.com please only email if you can help us! We need some peaceful time with our baby boy 💔 xxx
2017年7月26日 9:41, Charlie Gard #charliesfight Facebook
ホスピスへの移動を命じた判決は、多分入院先である GOSH の報告書の記載に基づくもの；
- Great Ormond Street Hospital position statement on GOSH patient Charlie Gard 25 July 2017 (357.37 KB)
”8. The other possibility is a hospice. After very many enquiries by the paediatric palliative care team, GOSH has found an excellent hospice willing to assist that would afford Charlie and his parents the space and privacy necessary to protect them all. A special area would be made available to them with the option for friends and family to visit. It would offer the opportunity to create memories and, perhaps, to begin a time of healing. Specialist support for the parents and the wider family might start there.”
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- Latest statement on GOSH patient Charlie Gard Great Ormond Street Hospital
27 July 2017
”Sadly, as the judge has now ruled, there is simply no way that Charlie, a patient with such severe and complex needs, can spend any significant time outside of an intensive care environment safely. The risk of an unplanned and chaotic end to Charlie’s life is an unthinkable outcome for all concerned and would rob his parents of precious last moments with him.”
- Latest statement on GOSH patient Charlie Gard Great Ormond Street Hospital
いたずらな延命措置は行わないが緩和ケアは不可欠、ってことなのだろうけれど、赤ちゃんが本当にそれを必要としているかは、シロート目には疑問。むしろ緩和ケアが赤ちゃんを苦しめる・苦しみを長引かせることだってあるのでは？ 赤ちゃんに限らず意思表示の出来ない患者さんの場合、難しいところ。この場合は病院のメンツより母親の直感が正しいとおもうけど。
一方、遅過ぎるかも知れないが僅かな可能性が残っているアメリカでの治療に関して；
- Charlie Gard’s fate was at mercy of British government, not parents
Monday, July 24, 2017, The Washington Times
カネに糸目を付けない −−− おカネ持ちだけのための、とも言えるが −−− 試験的 （バクチというか冒険的？） なものも含む最新の治療なら、確かにアメリカは世界最高の環境にある筈。もっと早ければ一縷の望みに賭けることも出来たのでは？ 実際に奏功したケースがある様だし；
- Angela Hoofmanさんのツイート @Fight4Charlie @JKCorden 14 ppl have received this treatment, why won't the UK allow Charlie the same freedom
※ この患者さんの詳細は未確認ですが −−−
裁判所の許可に基づいて渡英・診断した アメリカの医師 に関して；
- CHARLIE CASE; US doctor Michio Hirano who flew to London to examine Charlie Gard after offering experimental treatment hits back at ‘financial interest’ claims
Updated: 26th July 2017, 7:25 am, The Sun
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- Charlie Gard: Professor who offered to help baby has 'financial interest' in drug he was treating him with, says GOSH
Tuesday 25 July 2017 16:14 BST|, The Independent
- Charlie Gard: Professor who offered to help baby has 'financial interest' in drug he was treating him with, says GOSH
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- Charlie Gard is given legal permanent residence in US by Congress so 'he can fly to the States for world class treatment'
Updated: 16:48 BST, 19 July 2017, Daily Mail Online
- Charlie Gard is given legal permanent residence in US by Congress so 'he can fly to the States for world class treatment'
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- Charlie Gard: US doctor meets Great Ormond Street medics
17 July 2017, BBC News
- Charlie Gard: US doctor meets Great Ormond Street medics
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- British baby Charlie Gard to be evaluated by US doctor
Updated 0434 GMT (1234 HKT) July 17, 2017, CNN
- British baby Charlie Gard to be evaluated by US doctor
これでは末期ガンで獄死した劉暁波氏の海外移送・治療 （単なる延命措置でしかなかったろうけれど） を拒絶した中国政府の対応を批判など出来ないでしょう。
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